1Voice takes a family and social perspective on communication and recognises the great need for adult role models to inspire children and families alike. 1Voice promotes families supporting each other to overcome the isolation that being unable to speak can bring.
1Voice - Communicating Together is recognised as an important resource of people who use Augmentative and Alternative Communication systems. The office frequently gets requests to ask our members to participate in a variety of research programmes. We have two that have recently contacted us. Please consider if you can help or know others that could help.
In no special order:
Sally wants to know if any 1Voice young members would be interested in being on a national advisory committee? It would be great to have an AAC user on it. the advert is here: http://www.councilfordisabledchildren.org.uk/what-we-do/our-networks/mak...
Shahreen is a Researcher from City University London, working on a project which aims to explore the experiences of children and young people with neurodisability at mealtimes. For her project she is interested in children and young people's views of risk associated with gastrostomy feeding.
In order to take part, children and young people must meet the following criteria:
a) a diagnosis of CP or other neurodisability
b) a diagnosis of dysphagia or feeding difficulties
c) an existing gastrostomy or where one has been recommended, including CYP who are undecided about the gastrostomy
d) capacity to consent/assent and participate in research interviews,
e) reasonable level of communication using AAC/communication aids as assessed by the school who will send information and consent forms to parents of CYP
f) aged 5 – 25
Exclusion criteria: Some children and young people may not be suitable for this project and will not be asked to participate. i.e. those with severe cognitive impairment such that they are not able to express their consent/assent to participate in research, or express their views through AAC and children younger than 5 years of age. Head teachers/school therapists/other key individuals will make this judgement in the first place.
Please contact her if you are interested in taking part, require any further information or would like to discuss this further. email@example.com Tel: 020 7040 5881
We have OPENED the online registration system for the next National Residential Weekend of 2016
Please go to Events, read the information provided and click on Register at the bottom of the page. Quick link here
Registrations will continue until June 24th. However, places go fast, so please don't wait too long.
Do you know cyclists that would sponsor this ride? A partner closely associated with 1Voice is doing a sponsored bike ride LEJOG (Lands End to John O Groats)
Please pass on this fundraising/sponsored link to your two wheeled afficionados!
Thank you. Every word counts and every penny helps!
NHS England has published a new guide (pdf file) on how Augmentative and Alternative Communication (AAC) services are organised, with the aim of improving access to these services for all patients – children and adults.
AAC services help people communicate as effectively as possible when speech is impaired, and the guide is aimed at anyone with an interest in how they are provided.
The guide describes how the commissioning of these services is organised between “local” AAC services and “specialised” AAC services, as well as what those services offer and how they are accessed.
The guide (pdf) is freely available at https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/guid-comms-aac.pdf
Naomi is an Occupational Therapist studying a PhD at the University of Brighton. Naomi is hoping to explore how children with high levels of physical disability experience play in order that she can inform the way play is used and valued in practice. Naomi is looking for 6-12 year olds who have limited self mobility (GMFCS IV or V), need adaptations to handle objects (MACS III-V), and will be able to communicate with Naomi for at least 1 hour, talking for 20 minutes bursts of conversation with breaks if necessary (CFCS I-II).
If you are interested, please contact her at: firstname.lastname@example.org or 07494760905